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SADaCC

Sickle Africa Data Coordinating Center (SADaCC) is an administrative and data standardization and coordinating center for Sickle Cell Disease which is funded by the NHLBI (NIH). Its current mandate is to focus on supporting and coordinating data for a partner research network, SPARCO with plans to expand this support to the Sickle Cell Pan African Network in the future.

Vision

Decreased prevalence, mortality and morbidity rates of SCD and improved quality of care and life for SCD patients through use of evidence-based decisions.

Mission

SADaCC’s mandate is to support, enhance and coordinate SPARCO communications and data relevant issues, with future plans aimed at being a global SCD data standards and coordinating center.

SADaCC Conceptual Framework

SADaCC has a core team of staff and consultancies which has a range of expertise which includes Bioinformatics, Software development, Clinical Research, Databasing, Epidemiology, Bioethics and Training. SADaCC has a core team of staff and consultancies which has a range of expertise which includes Bioinformatics, Software development, Clinical Research, Databasing, Epidemiology, Bioethics and Training. Coordination of communications, infrastructure support and training for SPARCO is done collaboratively with the SPARCO Hub through six working groups made up  SPARCO, SADaCC, Funders and SPAN members. These include: Data Management, Research, Standards of Care, Sickle Cell Disease Ontology, Skills Development and the Steering Committee. 

 

 

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